Our engaged patient community is critical for advancing research. 

Now the only thing I’m hoping for is a cure or even a way to reverse the progression of gyrate atrophy.

“During COVID I taught myself how to cook, catering to the gyrate atrophy diet. I love it so much and it genuinely made me so much happier and healthier. “

“Since I was little, I was extremely near-sighted. When my older brother found out he had GA, my younger brother and I got tested. I had it and he didn’t.”

“We are blessed with 2 lovely daughters. Both of them have been prescribed spectacles since the age of 3 due to poor vision.”

”I decided to study medicine and during my training, I deeply researched this disease. I found that there is a treatment [the diet] that can stop visual loss.”

“As a child, sunlight bothered me. I had cataract surgery in 2007 and 2008. In 2009 I was diagnosed with a high level of ornithine. I take pyridoxine and creatine daily.”

“It is tough to receive this diagnosis and navigate the vision changes. But it makes me more grateful for each moment and helps instill a desire to live my life to the fullest.”